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Cystinosis Links:
Cystinosis
Foundation
Cystinosis Research
Network
Cystinosis
Central
Cystinosis is a genetic disease characterized by the accumulation of amino acid cystine in organs of the body eventually causing kidney disease. Symptoms such as excessive thirst and urination, failure to thrive, rickets, and episodes of dehydration begin in infantile Cystinosis between the ages of 6-18 months.
Visit the Cystinosis Foundation Website to learn more about this disease.
Coming Soon! Child's picture
book available by the end of April
A Day in the Life of Shawn...a Child with Cystinosis Only $5
(paperback).
100% of the proceeds will go to the Cystinosis Foundation for research.
Contact Holly if you would like to purchase one for yourself or donate
one to a Cystinosis family, hospital or clinic. Phone: 507.245.3844
An annual balloon rally is
held in February of each year here in Southern Minnesota. Usually 3-6
Balloonists fly. For the rides that are given, 100% of money donated
goes to the Cystinosis Foundation for research. 